(with password from Amplitude Help Desk - see number below) REGISTRY LOGIN PORTAL
Launch of the NAHR to all BHS members at Manchester BHS AGM - March 2012
Register by phoning Amplitude helpdesk: 0333 014 6363
NICE guidance on open and arthroscopic femoro-acetabular surgery for Hip Impingement Syndrome states that surgeons should submit details of this surgery to the NAHR (see downloads).
Surgeons who will be entering data are requested to ensure that their contact details held by the BHS are up to date. Please contact Claire Wilson (email@example.com) to check.
Surgeons who are not members of the BHS can enter data onto NAHR.
Draft Policy Documents, Consent Forms etc. are available for comment from BHS members from the "Documents for download" page: here
The NAHR is a national register of operations on, or around the hip other than hip replacements and operations carried as a consequence of acute trauma to the hip.
The hip joint and surrounding tissues can be affected by many different conditions, some of which may require surgery for their treatment. These operations are common and usually successful, bringing many patients improved mobility and relief from pain. However, when there is a choice of procedures for a condition it is not always clear which operation gives the best results for patients in the long term. A number of people may at some time in the future need another operation on the same joint.
The results of hip replacements (hip arthroplasties) in England and Wales are already captured on the National Joint Registry (NJR) (http://www.njrcentre.org.uk/). To improve further the quality of hip surgery in the United Kingdom, the British Hip Society has set up the Non Arthroplasty Hip Register (NAHR) to monitor the outcome for patients of all other types of operations on the hip. Cases from both the NHS and the independent health care sectors are included in this register, the success of which depends on gathering information on as many people having these operations as possible.
Surgeons carrying out this type of surgery will enter data if a patient gives their consents for the information to be recorded. Patients will then be contacted for information about their progress, ideally by e-mail, at infrequent intervals after the operation.
Data collected via the NAHR may be used to establish the success of surgery and for medical research, however this data will be anonymised so that it will not be possible to identify individual patients.
Bluespier is the data processor and the BHS is the data controller. Consent will be required from patients for their data to be entered on the NAHR. The system is fully compliant with the Data Protection Act.
The data will be used to bring direct benefits to patients by:
• improving patient awareness of the outcomes of operations on the hip since results will be available in the public domain
• comparing the success rates of different operations on the hip
• helping to identify which patients would benefit from a specific surgical technique
• identifying which surgical procedure is most likely to bring benefit for a specific diagnosis
The NAHR data will bring additional long-term benefits to surgeons and hospitals by:
• providing feedback to orthopaedic surgeons to define which patients will benefit from surgery and what details of the operative procedure will define a good result. The surgeon will have validated outcome data available to them.
• identifying patients who are likely to benefit from a particular procedure
• promoting open publication of outcomes following surgery
Key Reports from NAHR in the future will include the following:
• Outcomes by operation andor diagnosis
• Further surgery based on selected procedure and/or diagnosis
• Outcome by Patient Reported Outcome Scores (PROMS data)
The creation of a Non Arthroplasty Hip Register was unanimously supported by the Membership of the British Hip Society at the Annual General Meeting in Torquay (March 2011). The formation of the NAHR has at all times been an open process and all BHS members are encouraged to contribute and comment on any aspect of the project. The current Minimum Dataset and all Policy Documents are available for review from the documents page. Please direct comments to any member of the BHS Executive or the NAHR Subcommittee or through Natasha Wainwright (firstname.lastname@example.org).
The NAHR has been set for data entry on any type of hip condition and/or surgery other than arthroplasty and the treatment of acute fracture. Data can be entered for patients who do not undergo surgery for any specific condition so that their clinical course can be followed.
Clinicians can use the Register to collect and display comprehensive outcome and audit data for all of their own patients using scores and outcome measures of their own choice. For those wanting to collect their own data tuition on how to do this will be given by Bluespier although the NAHR site has been set up to be used intuitively. More information will follow.
Alternatively clinicians may choose to facilitate only collection of the initial Minimum Data Set (as they do with the NJR) and leave the Registry to collect further outcome data. The MDS Forms will be available for printing out when the Register is launched and the clinician will merely have to arrange for someone to enter the data onto the NAHR website on their behalf.
No other clinician, including members of the NAHR Subcommittee will be able to view an individual surgeons data or outcomes. All data will be anonymised.
Chair: John Timperley (Past President BHS)
Marcus Bankes (Chairman NAHR User Group)
Dominic Meek (Member at Large BHS Exec.)
Lucy Wilson (Patienst Representative)
Dr Sarah Whitehouse (Ph.D, Statistician, Queensland University of Technology)
Marcus Bankes (Chairman. Individual Feedback Lead)
John Timperley (Chair NAHR Subcommittee)
Matt Wilson (Secretary, Annual Repot Lead)
Tony Andrade (International Advisor/Industry Liaison)
Tim Board (Data Quality and Completeness)
Max Fehily (Surgeon engagement)
Jon Conroy (Website and Newsletters)
|Great Western Hospital, Swindon||Adam Brooks|
|Wansbeck General Hospital, Ashington||Ajay Malviya|
|Hexham General Hospital, Hexham||Ajay Malviya|
|Royal Victoria Infirmary, Newcastle Upon Tyne||Ajay Malviya|
|Queen Alexandra Hospital, Portsmouth||Andy Langdown|
|Nuffield Health Chichester Hospital, Chichester||Andy Langdown|
|Peterborough City Hospital, Peterborough||Araz Massraf|
|Ramsay Fitzwilliam Private Hospital, Peterborough||Araz Massraf|
|Wrightington Hospital, Wigan||Asim Rajpura|
|Chapel Allerton Hospital, Leeds||Colin Holton|
|Leeds General Infirmary, Leeds||Colin Holton|
|Stepping Hill Hospital, Stockport||David Bamford|
|Great Western Hospital, Swindon||David Hollinghurst|
|St Michael's Hospital, Hayle||Gavin Bartlett|
|Royal Cornwall Hospital, Truro||Gavin Bartlett|
|South West London Elective Orthopaedic Centre, Epsom||Giles Stafford|
|Wrightington Hospital, Wigan||Henry Wynn Jones|
|London Clinic, London||Johan Witt|
|University College Hospital, London||Johan Witt|
|BMI Harrogate Hospital, Harrogate||Jonathan Conroy|
|Harrogate District Hospital, Harrogate||Jonathan Conroy|
|Spire Clare Park Hospital, Farnham||Jonathan Hull|
|Frimley Park Hospital, Frimley||Jonathan Hull|
|King Edward VII's Hospital Sister Agnes, London||Jonathan Hutt|
|South West London Elective Orthopaedic Centre, Epsom||Jonathan Hutt|
|Guy's Hospital, London||Marc George|
|Hospital of St John and St Elizabeth, London||Marcus Bankes|
|London Clinic, London||Marcus Bankes|
|Guy's Hospital, London||Marcus Bankes|
|Neath Port Talbot Hospital, Port Talbot||Matthew Dodd|
|Nuffield Health Exeter Hospital, Exeter||Matthew James Wilson|
|Royal Devon & Exeter Hospital, Exeter||Matthew James Wilson|
|Wrightington Hospital, Wigan||Mohammed Aslam|
|Ramsay Oaks Private Hospital, Colchester||Nic Wardle|
|Colchester General Hospital, Colchester||Nic Wardle|
|Lister Hospital, Stevenage||Nick de Roeck|
|Royal Infirmary of Edinburgh, Edinburgh||Paul Gaston|
|South West London Elective Orthopaedic Centre, Epsom||Richard Field|
|St Anthony's Hospital, Sutton||Richard Field|
|Spire Hull And East Riding Hospital, Hull||Sandeep Datir|
|Doncaster Royal Infirmary, Doncaster||Sanjeev Madan|
|Sheffield Childrens Hospital, Sheffield||Sanjeev Madan|
|Frimley Park Hospital, Frimley||Seb Sturridge|
|Wrightington Hospital, Wigan||Timothy Board|
|Royal Berkshire Hospital, Reading||Tony Andrade|
|Wrightington Hospital, Wigan||Tony Clayson|